On Feb 22, 2015, at 4:59 PM, Cathy Deman cfdeman@gmail.com [naion]
<naion@yahoogroups.com> wrote:
Hi Mark:
I had my NAION episode in 2010 (memorial weekend) and sought medical
attention as soon as I got back to work and the dr office was open.
The opthamologist said I had swelling, the family doc sent me to
neurologist who then ordered MRI of spine,C spine and Orbits and a
spinal tap to rule out MS (multiple scerlosis)
Those came back negative (yeah!) but I then went to two more neuro
opthamalogists and the second one confirmed the NAION diagnosis.
After about 5 weeks I finally had something I could call it. I have
not had a recurring attack in the other eye and it has been almost 5
years. The first 6 months was the hardest but now I function just fine
and my dominent good eye has taken over and I can drive, work and do
all the things I like.
The main thing is it is not a death sentence and surround yourself with
friends and try to get back t o all your activities as soon as
possible. I took 5 weeks off work, but then went back. (it was mainly
psycological time off, not physical) It was hard dealing with the
computer at first, but I made accomodations at my work that made it
easier for me (larger montior, different lighting etc).
I keep my head up and try not to sweat the samll stuff. My family was
a greta help and my friends were supportive (when they finally stopped
asking me if my eye was any better!!!!) It's not getting better ever.
But you do learn how to cope and itsd amazing how your brain takes over
and compensates with your good eye.
Keep the faith!
Cathy in Michigan
Friday, February 27, 2015
Story of Mr Rod who too is affected by NAION
|
11:07 AM (1 hour ago)
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Hi Mark,
My name is Rod. I had a Naion incident in my right eye in 2006 when I
was 38. I lost vision in most of my eye, although I can see a bit in
my peripheral vision. I participated in this group actively when it
happened and it was very therapeutic to hear from others. While it was
certainly traumatic at the time and I was concerned about future
incidents that would affect the other eye, I have had no further
deterioration in vision. I live a perfectly normal life. I just take
care of myself. Exercise, eat well, protect my other eye when I play
tennis or have a baseball catch with my son, etc. Your brain adjusts -
pretty awesome. You don't want to do things that will cause drops in
blood pressure, particularly avoid medications that drop blood pressure
whenever possible.
I did some analytical research with the group back then that is
probably posted somewhere way back in the group archives. I shared it
with some Neuro-opthomologists in the San Francisco area. I have been
seeing a NO in San Fran since then and we measure the change in vision.
No change at al over time.
The meds I take: Trental (prescription) that is for improved blood
circulation, 1 baby aspirin a day, fish oil capsule for good heart
health. I have changed nothing with my medications over time and I
believe it has helped, certainly hasn't hurt.
Early on, I thought about my eye incident all the time. It took a
while to get used to the situation. But you will get used to it and
you will begin to not think about it all the time. Hope this is
helpful
Best of luck Mark.
To all the rest of you including Screwie Louie, I hope you are all
doing well.
Rod
My name is Rod. I had a Naion incident in my right eye in 2006 when I
was 38. I lost vision in most of my eye, although I can see a bit in
my peripheral vision. I participated in this group actively when it
happened and it was very therapeutic to hear from others. While it was
certainly traumatic at the time and I was concerned about future
incidents that would affect the other eye, I have had no further
deterioration in vision. I live a perfectly normal life. I just take
care of myself. Exercise, eat well, protect my other eye when I play
tennis or have a baseball catch with my son, etc. Your brain adjusts -
pretty awesome. You don't want to do things that will cause drops in
blood pressure, particularly avoid medications that drop blood pressure
whenever possible.
I did some analytical research with the group back then that is
probably posted somewhere way back in the group archives. I shared it
with some Neuro-opthomologists in the San Francisco area. I have been
seeing a NO in San Fran since then and we measure the change in vision.
No change at al over time.
The meds I take: Trental (prescription) that is for improved blood
circulation, 1 baby aspirin a day, fish oil capsule for good heart
health. I have changed nothing with my medications over time and I
believe it has helped, certainly hasn't hurt.
Early on, I thought about my eye incident all the time. It took a
while to get used to the situation. But you will get used to it and
you will begin to not think about it all the time. Hope this is
helpful
Best of luck Mark.
To all the rest of you including Screwie Louie, I hope you are all
doing well.
Rod
Thursday, February 19, 2015
Oliver Sacks - the famous neurologist..says about loss of vision in one eye
And this from Oliver Sacks - the famous neurologist writer (himself blind in his right eye for many years as a result of melanoma) :
"....such experiences enlarge the imagination and show us what is often concealed in health: the complex workings of the brain and its astounding ability to adapt and overcome disability—to say nothing of the courage and strength that individuals can show, and the inner resources they can bring to bear, in the face of neurological challenges that are almost impossible for the rest of us to imagine." Sacks, Oliver (2011-06-16). The Mind's Eye (p. 2).
10 Things I Hate and Love about NAION - thoughts six months after my diagnosis.
Subject: 10 Things I Hate and Love about NAION - thoughts six months after my diagnosis.
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